Tuesday 11th April - Didn't have too good a night last night - woke several times and found it difficult to work out whether I was still on the boat or at home! Seriously it was a really weird feeling which I put down to the new steroids I started yesterday in preparation for the new course of chemo I start today. The new steroids should help with any side effects of the different drugs apparently. It was a long day today Reno and I arrived at the hospital at 9a.m. for my appointment but my drugs had not yet come up from pharmacy, by the time I had my cannula inserted and the anti sickness drug and saline it was 10.30 when we started with the hard core drugs the ones making me well again! These last four doses are all administered by drip so time seems to go a little slower and it was 3.10 p.m. by the time all the drugs had been fed in - however I felt absolutely fine - just tired which is the norm! Went home and rested for the rest of the evening.
Wednesday 12th April - Had a more restful night last night though I was awake for a two hour period between 2.30a.m. and 4.30a,m. as the nurse explained yesterday this is probably caused by the steroids so I am not too concerned as I can always nap during the day which I have done. I seem more tired than before with this treatment but apart from that so far so good!
Thursday 13th April - Went into work today after a better nights sleep. Have to admit I found it exhausting although Reno drove me there and picked me up again - it was impossible to catch up with much as there was so much to do from being on holiday but I have done what I can and have had a chat with my boss about getting some help in because I am not really sure how work is going to work out from now even two days a week may be too much when I appear to be needing so much more sleep and rest. Once home I rested up again and had a short sleep before my younger sister visited on her way home from work. It was nice of her to pop in and Reno was preparing dinner so she stayed too which kept me chatting about the holiday instead of falling asleep again which helped when it was bedtime! Today side effects are kicking in already - my mouth isn't sore but feels really strange and my taste is just awful - I am eating because I know I have to in order to build myself up again but it is so difficult to see a nice meal in front of you that you are looking forward to but then the first mouthful tastes rubbish and it's quite off putting. Trust me the blander the food is the better!!
Friday 14th April - Had a lay in today didn't wake until 6.00 a.m. and then dozed on and off until 8.45 a.m. Everything a bit of an effort and needed to rest after showering then dressing. Decided to go shopping with Reno but it all turned out to be a bit much and as soon as we returned I went to sleep whilst Reno and Sam did lunch. Taste and mouth are worse today plus I have niggling tummy ache (caused by constipation from the drugs - sorry but that's how it is!!) Eating and drinking just because I have to - seems like this is going to go on for some while! Just one good thing about it ........
Ice cream is not too bad at all!! So ice cream it is then breakfast, dinner and tea! My nails are starting to look a bit worse for wear so this evening I have paid them a bit of attention with nail cream and varnish which is recommended as the nails have a tendency to lift. Managed to iron a few items whilst sitting down this afternoon so am spending the evening in my favourite place ....... the conservatory where its bright and I can see the garden and nap whenever I feel like it!!!
All in all I have to say the symptoms are still not as bad as I had ever expected so I am very thankful and I have a lot to be grateful for - some people react more to the drugs but I feel fortunate with the little I have to put up with - it may seem like I grumble a lot but truly I shouldn't I really can cope with this and with only three treatments left I know I have the love and support all around me to get me through. I feel as strong as the day I was diagnosed and I intend to stay this strong until I am well and truly fit and healthy again!
Thanks a lot for sharing this informative post.
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