Thursday 04.05.2017 - So on Tuesday I had treatment number 6 and am now three quarters of the way through my chemotherapy - I left the hospital Tuesday fully equipped with all sorts of medication so that I am ready for any side effect that wants to be thrown at me! I will rattle well in a couple of weeks but who cares! I have antibiotics for oral thrush, cocaine mouthwash for if my mouth becomes sore as this allows me to continue to eat, steroids to hopefully lessen any side effects, more antibiotics to combat any other infection which may try to occur, cream to ease 'wind burn' on my face and five injections to go into my belly to boost my white blood cells!
So far not too bad, I have a bit of 'wind burn' and my mouth is a little sore but no infections raising their ugly heads! My hands are peeling just like a lizard losing its skin but that's not a problem - I have copious amounts of cream to apply as well as some cotton gloves to keep the cream on once smothered!
Generally since my last post on Friday 28th I am feeling quite well just extremely tired which is always to be expected. I am just listening to my body the whole time and if it says sleep I do just that - I know that sleep is all part of the process of healing. I am not too comfortable with the thought of doing my injections! So my sister, bless her, has come over Wednesday and today during her lunch break and done them for me! On Friday I am going to have a go with her watching me as she is going away for the weekend but if I am still not comfortable doing it I know that Reno has no qualms at all about doing the last two on Saturday and Sunday! I am managing to eat good (soft) meals and having plenty of fluids as instructed, with intermittent ice lollies to help try and keep my mouth cool! My temperature is behaving itself thank goodness and finding a pattern of taking it mid morning, mid afternoon and again at about 8pm works without me getting too paranoid taking it too often. Had a great nights sleep last night but the previous two were not so good but again I don't mind that as I appreciate how long I sleep during the day must have some impact. So all in all everything is jogging along nicely and fingers crossed it continues that way!
Before I finish for today I forgot to mention a couple of funny things that happened whilst I was in hospital which brightened up some quite serious days. The first was when I was given the first cocaine mouthwash I was still communicating by pen and paper to my sister and the doctor. As I was swirling this liquid around my mouth, bearing in mind I was also on diamorphine at the time, my sister asked me how the mouthwash was making my mouth feel. I wrote down 'Wonderful my mouth is going totally numb and so I can feel no pain! However, I am a little scared of all the little Goblins I can see running round the ward floor!' She looked really alarmed as did the doctor and said 'are you hallucinating?' at which I smiled the best way I could with my mouth still holding the cocaine and wrote down 'No, only joking'. Once I got rid of the mouthwash and could speak again we had quite a giggle about it!
The following day both my sisters visited together. My hands had turned quite a strange purple/red colour and I was sat up in bed with a cup of water lodged on my lap with one of my hands behind it. All of a sudden my sister grabbed my hand and said 'Your hands are going really strange - we need to get them looked at.' Needless to say the cup of water tipped over and I could feel it trickling down between my legs on to the bed just like I was wetting the bed!!! Well both my sisters and I giggled and giggled but then I said that one of them would have to come to the loo with me and help me change as now I had a drip in one arm and the diamorphine being fed into the other! So what happens? they decide to toss a coin to see who is going to help me in the loo department and who was going to make a cup of tea and ask a nurse to sort out the wet bed! My younger sister lost the toss so I guess you can guess which job she got!!! Anyway it all made for an amusing afternoon with us thinking that maybe they would be banned from visiting together in future!!!!
I am so glad that these amusing things happen - they all add a bit of brightness to some of the tougher days and being able to recount them makes me laugh which is a great medicine! One that doesn't make me rattle.
Feeling good today!
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